Why Do We Need Public and Patient Involvement?

The work of the CV-BRC is carried out for the benefit of everyone and it is only worth doing if it is going to make a positive difference to people’s lives. To make sure of this we need people like you to get involved in helping guide the research that we do.To be involved you don’t need any medical training or specialist knowledge, just some time to spare and a willingness to share your thoughts and ideas with us.  WE want to work WITH YOU to find how your experiences and ideas can help steer our research.

There are two main ways of getting involved in the work of the CV-BRC

  •          On a specific study
  •          On our Public and patient advisory group (PAG) 

Together we can decide on how to best get involved. If you are interested in finding out more about our PPI work or getting involved then please register your interest and we will get in touch.            

More details can be found on the Patient and Public Involvement Website 

Our recruitment leaflet is available here.

You can also follow us on Twitter to see what we are up to @BristolBRC or @CTEUBristol                                                                                             

Patient Advisory Group  

Our PPI advisory group is made up of members of the public who meet on a quarterly basis to discuss the work of the CV-BRC.  Some of the tasks the group have been involved in have included;

  •          Helping us to decide what research to look at next
  •          Helping us to ensure that what we look at is important
  •          Contributing to the design of the PPI website and recruitment leaflet
  •          Piloting a survey for researchers in the CV-BRC
  •          Advising on trial design

The PAG meetings are held in an informal and relaxed environment and are organised to try and fit in with its members other commitments. They can take place oin an evening, a weekend or during the working day, whatever suits the group best. If you would like to come along to meet our group and see what happens then please register your interest and we will be in touch.Everyone who joins our PAG group will have the opportunity to attend learning and development sessions to ensure that they are supported and confident in their PPI role.

Working in Partnership

People in Health West of England (PHWE) 

Working together with PHWE ensures that we involve patients and public in our work in the best way possible. Working with PHWE means that our public contributors can access the learning and development programmes PHWE offer. The PHWE website gives further information as well as providing a portal for other useful resources.http://www.phwe.org.uk/

INVOLVE 

INVOLVE is funded by the National Institute for Health Research, to support active public involvement in NHS, public health and social care research. Their website provides guidance and other resources for public contributors as well as literature developed for researchers looking to involve PPI in their own work.

http://www.invo.org.uk/about-involve

NIHR Collaboration for Leadership in Applied Health Research and Care (CLAHRC) West

West of England Academic Health Science Network (WEAHSN)

Bristol Health Partners (BHP)

NIHR Cardiovascular Biomedical Research Centre (CV-BRC)

NIHR Clinical Research Network (CRN)

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